Peran dan Hambatan Orang Tua dalam Pengasuhan Anak Penderita Kanker: Systematic Scoping Review
Naila Chasanah(1*), Yuli Kurniawati Sugiyo Pranoto(2), Ali Formen(3)
(1) Magister Pendidikan Anak Usia Dini, Universitas Negeri Semarang
(2) Pendidikan Anak Usia Dini, Universitas Negeri Semarang
(3) Pendidikan Anak Usia Dini, Universitas Negeri Semarang
(*) Corresponding Author
Abstract
Latar Belakang: Penelitian ini bertujuan sebagai gambaran secara umum terfokus pada orang tua anak usia dini terkait pentingnya peran orang tua dalam pengasuhan atau merawat anak penderita kanker.
Tujuan: Penelitian ini bertujuan untuk mengidentifikasi konsep, populasi sasaran, dan hasil analisis yang menjadi perhatian untuk memperjelas fokus karakteristik studi dalam penelitian terdahulu yaitu pengalaman orang tua dalam memberikan pengasuhan terhadap anak penderita kanker.
Metode: Pendekatan scoping review dengan bantuan fromework PICO, tahap seleksi selanjutnya menggunakan pendekatan PRISMA dengan menganalisis artikel sesuai dengan kriteria inklusi dan eksklusi berdasarkan tahun publikasi 2015 - 2024 dengan memperoleh hasil empat belas artikel yang dianalisis secara tematik. Pengumpulan data secara sekunder dengan sumber referensi secara online dari website Google Scholar, PubMed, ScienceDirect sebagai pencarian komprehensif.
Hasil: Sumber data pencarian diperoleh berskala mendunia berasal dari berbagai negara berkembang seperti Indonesia (n = 7), Ethiopia (n = 2), Yordania (n = 1), India (n = 1), dan negara maju seperti Jerman (n = 1), Denmark (n = 1), Australia (n = 1). Hasil dari penelitian dikaji secara mendalam sesuai dengan tema dan sub tema yaitu hambatan, faktor dukungan, dampak perubahan, dan kriteria atau sikap.
Kesimpulan: Intervensi atau tindakan dalam mengurangi kecemasan berlebihan dapat ditingkatkan dalam berkomunikasi dengan orang tua lain dan mengikuti pelatihan kesehatan mental.
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Andersen, E. M. (2023). As if I was a spacecraft returning to Earth’s atmosphere. Expanding insights into illness narratives and childhood cancer through evocative autoethnography. Health (United Kingdom). https://doi.org/10.1177/13634593231200123
Apriany, D. (2013). Hubungan Antara Hospitalisasi Anak dengan Tingkat Kecemasan Orang Tua. Jurnal Keperawatan Soedirman, 8(2), 92–104. http://jks.fikes.unsoed.ac.id/index.php/jks/article/view/185/86gmbran
Arksey, Hillary & O’Malley, L. (2005). Scoping Studies: Towards a Methodological Framework. International Journal of Social Research Methodology: Theory, Practice, 8(1), 19–32. https://doi.org/https://doi.org/10.1080/1364557032000119616
Atout, M., Hasan, A. A. H., Alkharabsheh, A. A. H., Al-Tobasi, A. M., & Ali, A. M. (2024). A narrative inquiry into the communication experiences of mothers caring for children with cancer in Jordan. Journal of Pediatric Nursing, xxxx. https://doi.org/10.1016/j.pedn.2024.02.021
Deribe, L., Addissie, A., Girma, E., Abraha, A., Adam, H., & Berbyuk Lindström, N. (2023). Stress and coping strategies among parents of children with cancer at Tikur Anbessa Specialized Hospital paediatric oncology unit, Ethiopia: a phenomenological study. BMJ Open, 13(1), e065090. https://doi.org/10.1136/bmjopen-2022-065090
Doumit, M. A. A., Rahi, A. C., Saab, R., & Majdalani, M. (2019). Spirituality among parents of children with cancer in a Middle Eastern country. European Journal of Oncology Nursing, 39(11), 21–27. https://doi.org/10.1016/j.ejon.2018.12.009
Ernst, M., Werner, A. M., Brähler, E., Wild, P. S., Faber, J., Merzenich, H., & Beutel, M. E. (2023). Posttraumatic growth after childhood cancer: Psychometric evaluation of a five-item short form and associations with mental health. Journal of Psychosomatic Research, 164(November 2022). https://doi.org/10.1016/j.jpsychores.2022.111099
Gise, J., & Cohen, L. L. (2022). Social Support in Parents of Children With Cancer : A Systematic Review. Journal of Pediactric Psychology, 47(3), 292–305. https://doi.org/10.1093/jpepsy/jsab100
Hakim, N., & Anugrahwati, R. (2019). Hubungan Karakteristik Orang Tua dengan Pengetahuan tentang Faktor Resiko Kanker pada Anak. Jurnal Ilmiah Keperawatan Altruistik, 2(1), 1–9. https://doi.org/10.48079/vol2.iss1.24
Hendrawati, S., Nurhidayah, I., & Mardhiyah, A. (2019). Self-efficacy parents in undergoing child cancer treatment at the Rumah Kanker Anak Cinta Bandung. NurseLine Journal, 4(1), 37–45. https://doi.org/https://doi.org/10.19184/nlj.v4i1.8911
Jibb, L. A., Pomeroy, B. C., Caregiver, F., Carriere, C., Mitchell, M., Hildenbrand, A., Coleman, M., & Lee, E. J. (2023). Trauma-Informed Care Practices to Support Caregivers of Children with Severe Illness: Protocol for A Systematic Review. Research Square, 1–16. https://assets.researchsquare.com/files/rs-2507214/v1/44889aee-eb0f-4b2e-aaf1-ae2a5acf054b.pdf?c=1691146706
Khanna, A. K., Prabhakaran, A., Patel, P., Ganjiwale, J. D., & Nimbalkar, S. M. (2015). Social, Psychological and Financial Burden on Caregivers of Children with Chronic Illness: A Cross-sectional Study. Indian Journal of Pediatrics, 82(11), 1006–1011. https://doi.org/10.1007/s12098-015-1762-y
Kusumadewi, A. R. (2019). Negosiasi Peran Yang Dilakukan Orang Tua Sebagai Caregiver Yang Memiliki Anak Penderita Kanker. Universitas Airlangga, 1–7.
Lempang, K. A. P., Sutiaputri, L. F., & Diana, D. (2021). Penyesuaian Diri Orang Tua Anak Pengidap Kanker dalam Proses Pengobatan Anak: Studi di Yayasan Rumah Cinta Anak Kanker Bandung. Jurnal Ilmiah Rehabilitasi Sosial (Rehsos), 3(1), 71–91. https://doi.org/10.31595/rehsos.v3i1.379
Melesse, T. G., Chau, J. P. C., Li, W. H. C., & Yimer, M. A. (2023). Family caregivers’ experiences of caring for children diagnosed with haematological malignancies receiving chemotherapy in Ethiopia: A qualitative study. European Journal of Oncology Nursing, 66(9), 1–7. https://doi.org/10.1016/j.ejon.2023.102376
Methley, A. M., Campbell, S., Chew-Graham, C., McNally, R., & Cheraghi-Sohi, S. (2014). PICO, PICOS and SPIDER: A comparison study of specificity and sensitivity in three search tools for qualitative systematic reviews. BMC Health Services Research, 14(1). https://doi.org/10.1186/s12913-014-0579-0
Nainggolan, A. I., Sari, T. R., & Hartanti. (2022). Efektivitas Pelatihan Resiliensi untuk Mengurangi Caregiver Burden pada Family Caregiver Anak Kanker. Jurnal Psikologi, 11(2), 223–233. https://doi.org/10.30872/psikostudia
Nielsen, I. H., Tolver, A., Piil, K., Kjeldsen, L., Grønbæk, K., & Jarden, M. (2024). Family caregiver quality of life and symptom burden in patients with hematological cancer: A Danish nationwide cross-sectional study. European Journal of Oncology Nursing, 69(February). https://doi.org/10.1016/j.ejon.2024.102538
Nurhidayah, I. (2023). Aefikasi Diri Orang Tua dalam Perawatan Anak dengan Kanker: Sebuah Studi Kuantitatif. Indonesian Journal for Health Sciences, 7(1), 43–56. journal.umpo.ac.id/index.php/IJHS
Nuris Yuhbaba, Z., Winarni, I., & Lestari, R. (2017). Studi Fenomenologi: Post Traumatic Growth pada Orang Tua Anak Penderita Kanker. Jurnal Ilmu Keperawatan (Journal of Nursing Science), 5(1), 81–95. https://doi.org/10.21776/ub.jik.2017.005.01.10
Ozawa, N., Shibayama, T., Hiraga, N., Fukushima, H., Suzuki, R., & Furuya, K. (2023). Parental readiness for the transition to adulthood of children with a chronic disease. Journal of Pediatri Nursing, 69, 56–61. https://doi.org/10.1016/j.pedn.2022.12.024
Pusmaika, R., Indrayani, I., Agustin, D., & Demang, F. Y. (2020). Pengalaman Orang Tua dalam Merawat Anak Penderita Kanker di Rumah Harapan Yayasan Valencia Jakarta. Jurnal Ilmu Kesehatan Bhakti Husada: Health Sciences Journal, 11(1), 1–15. https://doi.org/10.34305/jikbh.v11i1.149
Rasmita, D. (2023). Respon Orang Tua saat Anak Didiagnosa Kanker. Jurnal Ilmiah Kesehatan Mandira Cendikia, 2(6), 192–198. https://journal-mandiracendikia.com/jikmc
Saraswati, A., Nurhidayah, I., & Lukitasari, D. (2018). Hubungan Peran Orang Tua sebagai Caregiver dengan Kualitas Hidup Anak Kanker di Yayasan Kasih Anak Kanker Indonesia (YKAKI) Bandung. Jurnal Kampus STIKES YPIB Majalengka, 6(2), 17–30. https://doi.org/10.51997/jk.v6i2.12
Scarponi, D., Sarti, P., Rivi, V., Colliva, C., Marconi, E., Pession, A., & Blom, J. M. C. (2023). Caregivers of Children with Cancer : A Network Analysis Differentiation in Mothers ’ and Fathers ’ Reactivity. Cancers, 15, 3496.
Sitasari, N. W. (2022). Mengenal Analisa Konten Dan Analisa Tematik Dalam Penelitian Kualitatif Forum Ilmiah. Forum Ilmiah, 19, 77–84.
Supriatin, E., & Oktaviani, M. (2019). The Life Experience of Family As Caregiver in Child with Cancer. KnE Life Sciences, 2019, 155–161. https://doi.org/10.18502/kls.v4i13.523
Thomas, S., Ryan, N. P., Byrne, L. K., Hendrieckx, C., & White, V. (2023). Psychological Distress Among Parents of Children With Chronic Health Conditions and Its Association With Unmet Supportive Care Needs and Children’s Quality of Life. Journal of Pediatric Psychology. https://doi.org/10.1093/jpepsy/jsad074
Tricco, A. C., Lillie, E., Zarin, W., O’Brien, K. K., Colquhoun, H., Levac, D., Moher, D., Peters, M. D. J., Horsley, T., Weeks, L., Hempel, S., Akl, E. A., Chang, C., McGowan, J., Stewart, L., Hartling, L., Aldcroft, A., Wilson, M. G., Garritty, C., … Straus, S. E. (2018). PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation. Annals of Internal Medicine, 169(7), 467–473. https://doi.org/10.7326/M18-0850
Wahyuningsih, S. (2019). Buku Ajar Keperawatan Maternitas. In KHD Production.
Wijayanti, K, & Astuti, I. T. (2023). Aspek Psikososial pada Anak dengan Kanker. Jurnal Keperawatan, 15(3), 1235–1242. http://journal2.stikeskendal.ac.id/index.php/keperawatan/article/view/769
Wijayanti, Kurnia, & Astuti, I. T. (2021). Pengalaman Orang Tua dalam Merawat Anak Kanker. Jurnal Keperawatan, 13(3), 597–604. https://doi.org/10.32583/keperawatan.v13i3.1191DOI: https://doi.org/10.22146/jkesvo.97619
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