Peran dan Hambatan Orang Tua dalam Pengasuhan Anak Penderita Kanker: Systematic Scoping Review

https://doi.org/10.22146/jkesvo.97619

Naila Chasanah(1*), Yuli Kurniawati Sugiyo Pranoto(2), Ali Formen(3)

(1) Magister Pendidikan Anak Usia Dini, Universitas Negeri Semarang
(2) Pendidikan Anak Usia Dini, Universitas Negeri Semarang
(3) Pendidikan Anak Usia Dini, Universitas Negeri Semarang
(*) Corresponding Author

Abstract


Latar Belakang: Penelitian ini bertujuan sebagai gambaran secara umum terfokus pada orang tua anak    usia dini terkait pentingnya peran orang tua dalam pengasuhan atau merawat anak penderita kanker.

Tujuan: Penelitian ini bertujuan untuk mengidentifikasi konsep, populasi sasaran, dan hasil analisis yang menjadi perhatian untuk memperjelas fokus karakteristik studi dalam penelitian terdahulu yaitu pengalaman orang tua dalam memberikan pengasuhan terhadap anak penderita kanker.

Metode: Pendekatan scoping review dengan bantuan fromework PICO, tahap seleksi selanjutnya menggunakan pendekatan PRISMA dengan menganalisis artikel sesuai dengan kriteria inklusi dan eksklusi berdasarkan tahun publikasi 2015 - 2024 dengan memperoleh hasil empat belas artikel yang dianalisis secara tematik. Pengumpulan data secara sekunder dengan sumber referensi secara online dari website Google Scholar, PubMed, ScienceDirect sebagai pencarian komprehensif.

Hasil: Sumber data pencarian diperoleh berskala mendunia berasal dari berbagai negara berkembang seperti Indonesia (n = 7), Ethiopia (n = 2), Yordania (n = 1), India (n = 1), dan negara maju seperti Jerman (n = 1), Denmark (n = 1), Australia (n = 1). Hasil dari penelitian dikaji secara mendalam sesuai dengan tema dan sub tema yaitu hambatan, faktor dukungan, dampak perubahan, dan kriteria atau sikap.

Kesimpulan: Intervensi atau tindakan dalam mengurangi kecemasan berlebihan dapat ditingkatkan dalam berkomunikasi dengan orang tua lain dan mengikuti pelatihan kesehatan mental.


Keywords


peran; orang tua; pengasuhan, anak penderita kanker

Full Text:

PDF


References

Andersen, E. M. (2023). As if I was a spacecraft returning to Earth’s atmosphere. Expanding insights into illness narratives and childhood cancer through evocative autoethnography. Health (United Kingdom). https://doi.org/10.1177/13634593231200123

Apriany, D. (2013). Hubungan Antara Hospitalisasi Anak dengan Tingkat Kecemasan Orang Tua. Jurnal Keperawatan Soedirman, 8(2), 92–104. http://jks.fikes.unsoed.ac.id/index.php/jks/article/view/185/86gmbran

Arksey, Hillary & O’Malley, L. (2005). Scoping Studies: Towards a Methodological Framework. International Journal of Social Research Methodology: Theory, Practice, 8(1), 19–32. https://doi.org/https://doi.org/10.1080/1364557032000119616

Atout, M., Hasan, A. A. H., Alkharabsheh, A. A. H., Al-Tobasi, A. M., & Ali, A. M. (2024). A narrative inquiry into the communication experiences of mothers caring for children with cancer in Jordan. Journal of Pediatric Nursing, xxxx. https://doi.org/10.1016/j.pedn.2024.02.021

Deribe, L., Addissie, A., Girma, E., Abraha, A., Adam, H., & Berbyuk Lindström, N. (2023). Stress and coping strategies among parents of children with cancer at Tikur Anbessa Specialized Hospital paediatric oncology unit, Ethiopia: a phenomenological study. BMJ Open, 13(1), e065090. https://doi.org/10.1136/bmjopen-2022-065090

Doumit, M. A. A., Rahi, A. C., Saab, R., & Majdalani, M. (2019). Spirituality among parents of children with cancer in a Middle Eastern country. European Journal of Oncology Nursing, 39(11), 21–27. https://doi.org/10.1016/j.ejon.2018.12.009

Ernst, M., Werner, A. M., Brähler, E., Wild, P. S., Faber, J., Merzenich, H., & Beutel, M. E. (2023). Posttraumatic growth after childhood cancer: Psychometric evaluation of a five-item short form and associations with mental health. Journal of Psychosomatic Research, 164(November 2022). https://doi.org/10.1016/j.jpsychores.2022.111099

Gise, J., & Cohen, L. L. (2022). Social Support in Parents of Children With Cancer : A Systematic Review. Journal of Pediactric Psychology, 47(3), 292–305. https://doi.org/10.1093/jpepsy/jsab100

Hakim, N., & Anugrahwati, R. (2019). Hubungan Karakteristik Orang Tua dengan Pengetahuan tentang Faktor Resiko Kanker pada Anak. Jurnal Ilmiah Keperawatan Altruistik, 2(1), 1–9. https://doi.org/10.48079/vol2.iss1.24

Hendrawati, S., Nurhidayah, I., & Mardhiyah, A. (2019). Self-efficacy parents in undergoing child cancer treatment at the Rumah Kanker Anak Cinta Bandung. NurseLine Journal, 4(1), 37–45. https://doi.org/https://doi.org/10.19184/nlj.v4i1.8911

Jibb, L. A., Pomeroy, B. C., Caregiver, F., Carriere, C., Mitchell, M., Hildenbrand, A., Coleman, M., & Lee, E. J. (2023). Trauma-Informed Care Practices to Support Caregivers of Children with Severe Illness: Protocol for A Systematic Review. Research Square, 1–16. https://assets.researchsquare.com/files/rs-2507214/v1/44889aee-eb0f-4b2e-aaf1-ae2a5acf054b.pdf?c=1691146706

Khanna, A. K., Prabhakaran, A., Patel, P., Ganjiwale, J. D., & Nimbalkar, S. M. (2015). Social, Psychological and Financial Burden on Caregivers of Children with Chronic Illness: A Cross-sectional Study. Indian Journal of Pediatrics, 82(11), 1006–1011. https://doi.org/10.1007/s12098-015-1762-y

Kusumadewi, A. R. (2019). Negosiasi Peran Yang Dilakukan Orang Tua Sebagai Caregiver Yang Memiliki Anak Penderita Kanker. Universitas Airlangga, 1–7.

Lempang, K. A. P., Sutiaputri, L. F., & Diana, D. (2021). Penyesuaian Diri Orang Tua Anak Pengidap Kanker dalam Proses Pengobatan Anak: Studi di Yayasan Rumah Cinta Anak Kanker Bandung. Jurnal Ilmiah Rehabilitasi Sosial (Rehsos), 3(1), 71–91. https://doi.org/10.31595/rehsos.v3i1.379

Melesse, T. G., Chau, J. P. C., Li, W. H. C., & Yimer, M. A. (2023). Family caregivers’ experiences of caring for children diagnosed with haematological malignancies receiving chemotherapy in Ethiopia: A qualitative study. European Journal of Oncology Nursing, 66(9), 1–7. https://doi.org/10.1016/j.ejon.2023.102376

Methley, A. M., Campbell, S., Chew-Graham, C., McNally, R., & Cheraghi-Sohi, S. (2014). PICO, PICOS and SPIDER: A comparison study of specificity and sensitivity in three search tools for qualitative systematic reviews. BMC Health Services Research, 14(1). https://doi.org/10.1186/s12913-014-0579-0

Nainggolan, A. I., Sari, T. R., & Hartanti. (2022). Efektivitas Pelatihan Resiliensi untuk Mengurangi Caregiver Burden pada Family Caregiver Anak Kanker. Jurnal Psikologi, 11(2), 223–233. https://doi.org/10.30872/psikostudia

Nielsen, I. H., Tolver, A., Piil, K., Kjeldsen, L., Grønbæk, K., & Jarden, M. (2024). Family caregiver quality of life and symptom burden in patients with hematological cancer: A Danish nationwide cross-sectional study. European Journal of Oncology Nursing, 69(February). https://doi.org/10.1016/j.ejon.2024.102538

Nurhidayah, I. (2023). Aefikasi Diri Orang Tua dalam Perawatan Anak dengan Kanker: Sebuah Studi Kuantitatif. Indonesian Journal for Health Sciences, 7(1), 43–56. journal.umpo.ac.id/index.php/IJHS

Nuris Yuhbaba, Z., Winarni, I., & Lestari, R. (2017). Studi Fenomenologi: Post Traumatic Growth pada Orang Tua Anak Penderita Kanker. Jurnal Ilmu Keperawatan (Journal of Nursing Science), 5(1), 81–95. https://doi.org/10.21776/ub.jik.2017.005.01.10

Ozawa, N., Shibayama, T., Hiraga, N., Fukushima, H., Suzuki, R., & Furuya, K. (2023). Parental readiness for the transition to adulthood of children with a chronic disease. Journal of Pediatri Nursing, 69, 56–61. https://doi.org/10.1016/j.pedn.2022.12.024

Pusmaika, R., Indrayani, I., Agustin, D., & Demang, F. Y. (2020). Pengalaman Orang Tua dalam Merawat Anak Penderita Kanker di Rumah Harapan Yayasan Valencia Jakarta. Jurnal Ilmu Kesehatan Bhakti Husada: Health Sciences Journal, 11(1), 1–15. https://doi.org/10.34305/jikbh.v11i1.149

Rasmita, D. (2023). Respon Orang Tua saat Anak Didiagnosa Kanker. Jurnal Ilmiah Kesehatan Mandira Cendikia, 2(6), 192–198. https://journal-mandiracendikia.com/jikmc

Saraswati, A., Nurhidayah, I., & Lukitasari, D. (2018). Hubungan Peran Orang Tua sebagai Caregiver dengan Kualitas Hidup Anak Kanker di Yayasan Kasih Anak Kanker Indonesia (YKAKI) Bandung. Jurnal Kampus STIKES YPIB Majalengka, 6(2), 17–30. https://doi.org/10.51997/jk.v6i2.12

Scarponi, D., Sarti, P., Rivi, V., Colliva, C., Marconi, E., Pession, A., & Blom, J. M. C. (2023). Caregivers of Children with Cancer : A Network Analysis Differentiation in Mothers ’ and Fathers ’ Reactivity. Cancers, 15, 3496.

Sitasari, N. W. (2022). Mengenal Analisa Konten Dan Analisa Tematik Dalam Penelitian Kualitatif Forum Ilmiah. Forum Ilmiah, 19, 77–84.

Supriatin, E., & Oktaviani, M. (2019). The Life Experience of Family As Caregiver in Child with Cancer. KnE Life Sciences, 2019, 155–161. https://doi.org/10.18502/kls.v4i13.523

Thomas, S., Ryan, N. P., Byrne, L. K., Hendrieckx, C., & White, V. (2023). Psychological Distress Among Parents of Children With Chronic Health Conditions and Its Association With Unmet Supportive Care Needs and Children’s Quality of Life. Journal of Pediatric Psychology. https://doi.org/10.1093/jpepsy/jsad074

Tricco, A. C., Lillie, E., Zarin, W., O’Brien, K. K., Colquhoun, H., Levac, D., Moher, D., Peters, M. D. J., Horsley, T., Weeks, L., Hempel, S., Akl, E. A., Chang, C., McGowan, J., Stewart, L., Hartling, L., Aldcroft, A., Wilson, M. G., Garritty, C., … Straus, S. E. (2018). PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation. Annals of Internal Medicine, 169(7), 467–473. https://doi.org/10.7326/M18-0850

Wahyuningsih, S. (2019). Buku Ajar Keperawatan Maternitas. In KHD Production.

Wijayanti, K, & Astuti, I. T. (2023). Aspek Psikososial pada Anak dengan Kanker. Jurnal Keperawatan, 15(3), 1235–1242. http://journal2.stikeskendal.ac.id/index.php/keperawatan/article/view/769

Wijayanti, Kurnia, & Astuti, I. T. (2021). Pengalaman Orang Tua dalam Merawat Anak Kanker. Jurnal Keperawatan, 13(3), 597–604. https://doi.org/10.32583/keperawatan.v13i3.1191



DOI: https://doi.org/10.22146/jkesvo.97619

Article Metrics

Abstract views : 501 | views : 375

Refbacks

  • There are currently no refbacks.




Copyright (c) 2024 Naila Chasanah

Creative Commons License
This work is licensed under a Creative Commons Attribution-ShareAlike 4.0 International License.


 

Jurnal Kesehatan Vokasional with registered number ISSN 2541-0644 (print), ISSN 2599-3275 (online) published by the Departement of Health Information Management and Services, Vocational College, Universitas Gadjah Mada

site
stats View My Stats