Kebutuhan dan perawatan anak penyandang cerebral palsy yang mengalami drooling: studi eksplorasi
Andri Kenti Gayatina(1*), Fitri Haryanti(2), Elisabeth Siti Herini(3)
(1) Departemen Biostatistik, Epidemiologi, dan Kesehatan Populasi, Fakultas Kedokteran, Kesehatan Masyarakat, dan Keperawatan, Universitas Gadjah Mada
(2) Departemen Keperawatan Maternitas & Anak, Fakultas Kedokteran, Kesehatan Masyarakat, dan Keperawatan, Universitas Gadjah Mada
(3) RSUP Dr. Sardjito
(*) Corresponding Author
Abstract
Needs and care for cerebral palsy children with drooling: an exploratory study
Purpose: To explore the needs and care and expectations of parents of children with disabilities that improve saliva.
Methods: A qualitative research with a phenomenology conducted at YPAC Semarang in September 2016. Data were collected using in-depth interviews with 6 maternal participants who were selected through purposive sampling and 1 doctor improving medical and 1 teacher as a triangulation participant. Data analysis was performed according to Collaizi's steps.
Results: This study produced ten themes, namely: the need to deal with saliva; overcoming feelings of sadness, shame, brokenness, low self-esteem, hurt, sensitive, offended when the child is humiliated, can not bear, feelings of rejection, not accept, afraid and violate themselves; Overcoming the shame of children; Budget for pediatric therapy; strength, enthusiasm, gratitude, patience and endeavor; accepted by the community and considered by the government; Environmental modification; efforts to overcome saliva; poor understanding of mothers; expectation of the mother towards the foundation and the government regarding health services, education, and children's independence.
Conclusions: Optimizing the fulfillment of needs and care for CP children who increase the saliva of class IV and V by overcoming saliva using a saliva absorber and prolonging treatment.
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- Yalçin, S., Root, L., Ganjwala, D., Koloyan, G., & Eti, Zeynep. Cerebral Palsy. 2010. Available: http://www.cbm.org/article/downloads/54741/CerebralPalsyToolkit-_Part2ManualEnglish.pdf
- Tahmassebi JF, Curzon MEJ. Prevalence of drooling in children with cerebral palsy attending special schools. Developmental Medicine & Child Neurology. 2003. doi:10.1017/s0012162203001117
- Kolcaba K. An Introduction to comfort theory. 2010. Available: https://www.thecomfortline.com
- Adams J. Nursing Theorists and Their Work – Eighth edition Alligood Martha Raile Nursing Theorists and Their Work – Eighth edition 816pp £43.34 Elsevier 978 0 3230 9194 7 0323091946. Nursing Standard. 2014. pp. 32–32. doi:10.7748/ns.29.7.32.s35
- Creswell J.W. Penelitian Kualitatif Dan Desain Riset Memilih Di Antara Lima Pendekatan. Alih Bahasa Oleh Ahmad, editor. Yogyakarta: Pustaka Pelajar; 2013.
- Fairhurst CBR, Cockerill H. Management of drooling in children. Archives of Disease in Childhood - Education and Practice. 2010. pp. 25–30. doi:10.1136/adc.2007.129478
- Iro H ZJ. GMS | GMS Current Topics in Otorhinolaryngology - Head and Neck Surgery | Salivary gland diseases in children. [cited 1 Dec 2019]. Available: http://doi.org/10.3205/cto000109
- Debora, O. Proses Keperawatan Dan pemeriksaan Fisik. Jakarta: Salemba Medika; 2012.
- Delphie dan Bandi. Pembelajaran Anak Tunagrahita. Bandung: P.T. Refika Aditama; 2006.
- Irma Herliana A. Pengalaman keluarga dalam merawat anak cerebral palsy di Kabupaten Garut: Studi Fenomenologi = Family experience of caring children with cerebral palsy in Garut regency: Study of phenomenology. 2011 [cited 1 Dec 2019]. Available: http://lib.ui.ac.id
- Saharso, D. Diagnosis Dan Tatalaksana Cerebral Palsy. Surabaya: Bagian Ilmu Kesehatan Anak FK Unair RSU Dr. Soetomo; 2006.
- Nimbalkar S, Raithatha S, Shah R, Panchal DA. A Qualitative Study of Psychosocial Problems among Parents of Children with Cerebral Palsy Attending Two Tertiary Care
- Presiden Republik Indonesia. Undang-Undang Republik Indonesia No 25 Tahun 2009, Bab II, Pasal 5 ayat 2 dan Pasal 18. 2009.
DOI: https://doi.org/10.22146/bkm.34689
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